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Genetics - Ethics, History, and Stories
Call Number: Fiction
Publication Date: 2012-02-14
SOON TO BE A MAJOR MOTION PICTURE STARRING JULIA ROBERTS, OWEN WILSON, AND JACOB TREMBLAY! Over 6 million people have read the #1 New York Times bestseller WONDER and have fallen in love with Auggie Pullman, an ordinary boy with an extraordinary face. The book that inspired the Choose Kind movement. I won't describe what I look like. Whatever you're thinking, it's probably worse. August Pullman was born with a facial difference that, up until now, has prevented him from going to a mainstream school. Starting 5th grade at Beecher Prep, he wants nothing more than to be treated as an ordinary kid--but his new classmates can't get past Auggie's extraordinary face. WONDER, now a #1 New York Times bestseller and included on the Texas Bluebonnet Award master list, begins from Auggie's point of view, but soon switches to include his classmates, his sister, her boyfriend, and others. These perspectives converge in a portrait of one community's struggle with empathy, compassion, and acceptance. "Wonder is the best kids' book of the year," said Emily Bazelon, senior editor at Slate.com and author of Sticks and Stones: Defeating the Culture of Bullying and Rediscovering the Power of Character and Empathy. In a world where bullying among young people is an epidemic, this is a refreshing new narrative full of heart and hope. R.J. Palacio has called her debut novel "a meditation on kindness" --indeed, every reader will come away with a greater appreciation for the simple courage of friendship. Auggie is a hero to root for, a diamond in the rough who proves that you can't blend in when you were born to stand out. Join the conversation: #thewonderofwonder
The Gene by
Call Number: RB155 .M85 2016
Publication Date: 2016-05-17
Riveting, revelatory, and magisterial history of a scientific idea coming to life, and an essential preparation for the moral complexity introduced by our ability to create or “write” the human genome, The Gene is a must-read for everyone concerned about the definition and future of humanity. This is the most crucial science of our time, intimately explained by a master.
Me Medicine vs. We Medicine by
Call Number: RA427.25 .D53 2013
Publication Date: 2013-06-18
Personalized healthcare--or what the award-winning author Donna Dickenson calls "Me Medicine"--is radically transforming our longstanding "one-size-fits-all" model. Technologies such as direct-to-consumer genetic testing, pharmacogenetically developed therapies in cancer care, private umbilical cord blood banking, and neurocognitive enhancement claim to cater to an individual's specific biological character, and, in some cases, these technologies have shown powerful potential. Yet in others they have produced negligible or even negative results. Whatever is behind the rise of Me Medicine, it isn't just science. So why is Me Medicine rapidly edging out We Medicine, and how has our commitment to our collective health suffered as a result? In her cogent, provocative analysis, Dickenson examines the economic and political factors fueling the Me Medicine phenomenon and explores how, over time, this paradigm shift in how we approach our health might damage our individual and collective well-being. Historically, the measures of "We Medicine," such as vaccination and investment in public-health infrastructure, have radically extended our life spans, and Dickenson argues we've lost sight of that truth in our enthusiasm for "Me Medicine." Dickenson explores how personalized medicine illustrates capitalism's protean capacity for creating new products and markets where none existed before--and how this, rather than scientific plausibility, goes a long way toward explaining private umbilical cord blood banks and retail genetics. Drawing on the latest findings from leading scientists, social scientists, and political analysts, she critically examines four possible hypotheses driving our Me Medicine moment: a growing sense of threat; a wave of patient narcissism; corporate interests driving new niche markets; and the dominance of personal choice as a cultural value. She concludes with insights from political theory that emphasize a conception of the commons and the steps we can take to restore its value to modern biotechnology.
The Shape of the Eye by
Call Number: RJ506.D68 E88 2011
Publication Date: 2011
"In this wise and moving memoir, George Estreich tells the story of his family as his younger daughter is diagnosed with Down syndrome and they are thrust into an unfamiliar world. Estreich writes with a poet's eye and gift of language, weaving this personal journey into the larger history of his family, exploring the deep and often hidden connections between the past and the present."
Medicine after the Holocaust by
Call Number: R509 .M43 2010x
Publication Date: 2010
"In an effort to create the Master Race, Nazi physicians and bioscientists, using American legislative models, money, and moral support, sterilized 400,000 and euthanized 200,000 German citizens while developing the gas chambers and crematoria used to murder 6,000,000 Jews...This groundbreaking work questions whether, since the best physicians of the early twentieth century could abandon their patients, the best physicians of the twenty-first century can be certain that they will not do the same."
Genetic Rounds by
Call Number: RB155 .M345 2009
Publication Date: 2010
"His gripping stories illuminate a cutting-edge field of impossible moral complexities and incredible scientific breakthroughs that draw him deep into the lives of his patients and their families when they need him the most. Genetics is a specialty of secrets...In Genetic Rounds, he tells the surprising true stories of daily life as a clinical geneticist. From the girl whose bones break at the lightest touch to the boy who is unable to sweat, Dr. Marion imparts the life-long lessons he has learned from his most incredible cases. He walks us through perplexing medical puzzles that have sharpened his wit and transformed him into a Sherlock Holmes in his field."
The Boy in the Moon by
Call Number: RB155.5 .B76 2009
Publication Date: 2011-04-26
"Ian Brown's son Walker is one of only about 300 people worldwide diagnosed with cardiofaciocutaneous (CFC) syndrome, an extremely rare genetic mutation that results in unusual facial appearance, the inability to speak, and a compulsion to hit himself constantly. At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker's doctors can't answer."
Three Generations, No Imbeciles by
Call Number: KF224.B83 L66 2008
Publication Date: 2008
""Three generations of imbeciles are enough." Few lines from Supreme Court opinions are as memorable as this declaration by Justice Oliver Wendell Holmes Jr. in the landmark 1927 case Buck v. Bell. The ruling allowed states to forcibly sterilize residents in order to prevent "feebleminded and socially inadequate" people from having children. It is the only time the Supreme Court endorsed surgery as a tool of government policy...In 1924 Carrie Buck -- involuntarily institutionalized by the State of Virginia after she was raped and impregnated -- challenged the state's plan to sterilize her. Having already judged her mother and daughter mentally deficient, Virginia wanted to make Buck the first person sterilized under a new law designed to prevent hereditarily "defective" people from reproducing."
Babies by Design by
Call Number: RB155 .G74 2007
"A leader in the bioethlcs community, Ronald M. Green offers a scientifically and ethically informed view of human genetic self-modification and the possibilities it presents for a better future. Fears of a terrible Brave New World scenario or a new eugenics movement are overblown, he maintains, and in the more likely future, genetic modifications may improve parents' ability to enhance their children's lives and may even promote social justice."
The Troubled Dream of Genetic Medicine
Call Number: RB155.5 .W35 2006
"Why do racial and ethnic controversies become attached, as they often do, to discussions of modern genetics? How do theories about genetic difference become entangled with political debates about cultural and group differences in America? Such issues are a conspicuous part of the histories of three hereditary diseases: Tay-Sachs, commonly identified with Jewish Americans; cystic fibrosis, often labeled a "Caucasian" disease; and sickle cell disease, widely associated with African Americans."
Is Human Nature Obsolete?
Call Number: QH438.7 .I8 2005
Publication Date: 2004
"As our scientific and technical abilities expand at breathtaking speeds, concern that modern genetics and bioengineering are leading us to a posthuman future is growing. Is Human Nature Obsolete? poses the overarching question of what it is to be human against the background of these current advances in biotechnology."
Call Number: ask at desk
About Williams Syndrome - see http://www.embraceablemovie.com/
The Power of Two
Call Number: RC858.C95 P69 2011x
Inspired by their 2007 memoir, The Power Of Two offers an intimate portrayal of the bond between half-Japanese twin sisters Anabel Stenzel and Isabel Stenzel Byrnes, their battle with the fatal genetic disease cystic fibrosis (CF) and miraculous survival through double lung transplants. Defying all odds, Ana and Isa have emerged as authors, athletes and global advocates for organ donation, and their connection to the CF and transplant communities provides rare insight into the struggles and overlooked joys of chronic illness.
Memory Keeper's Daughter
Call Number: ask at desk
"A doctor who concocts a plan to separate his boy-girl twins at birth tells his wife that the girl twin was stillborn, when, in reality, she was born with Down Syndrome. But he has no idea that his actions will haunt him and his family for the next 20 years."