End of Life
This guide contains recent article citations and books and journals held by the Mayo Clinic Libraries related to the end of life care.
Featured Books
Doing Dignity by
Explores human dignity and care in the face of disease and disability. Complex contemporary experiences with disease, death, and disability in the United States have made the concept of human dignity seem outdated. In Doing Dignity: Ethical Praxis and the Politics of Care, Christa Teston challenges conventional notions of dignity and, based on analyses of clinical observations, interviews, and focus groups, encourages a new understanding of care. This thought-provoking book presents a practice-based approach to human dignity through three compelling case studies: US health care professionals' COVID-19 caretaking experiences, legislative debates about medical aid in dying, and clinical interactions between wheelchair users and health care professionals. Teston demonstrates how dignity is not an abstract idea but rather is a set of practices embedded in the politics and complexities of care. Drawing from feminist care ethics, rhetorical theory, disability studies, and critical Black studies, Doing Dignity offers a fresh perspective on the moral underpinnings of modern-day medicine. Teston explores how health care professionals enact dignity despite the challenges of market-based medicine, the commodification of care, and shifting societal discourse on disease, dying, and disability. This book transcends philosophical debates and provides practical insights for both patients and practitioners. Without falling into sentimentality or hopelessness, Doing Dignity honors human vulnerability while revealing how situational factors influence the practice of dignified care.
Call Number: R725.5 .T47 2024
ACT at the End by
ACT at the End is based on the principles of Acceptance and Commitment Therapy (ACT), and while it has a grounding in research, it is also a hands-on clinical guide for those working with people at a tricky and complex time of life. This treatment manual is arranged to support clinicians in stepping through common concerns and addressing the ways that people at this stage of life may require psychological support as well as strategies for supporting clinicians working in this space. The guide provides a formulated ACT approach to address each element of the Hexaflex, as well as work around self-compassion and using ACT approaches to support difficult decision making. This book provides examples that clinicians will be able to apply to their own practices and tools that they can use to troubleshoot clinical concerns. It's a helpful companion to clinicians navigating challenging terrain--much in the way that someone might turn to a colleague for advice, it is open and accessible, while still recognizing the ways in which that the work is hard.
Call Number: RC451.4.T47 L56 2024
Exploring End of Life Experience by
The groundbreaking contribution made by this unique book draws on the experiences recorded by five people who are facing death - Jenny Diski, Philip Gould, Christopher Hitchens, Michael Mayne and Cory Taylor.
Call Number: BF789.D4 B477 2024
What Kind of Death by
This book offers an examination of physician-assisted death, but it also extends the discussion to a broader range of end-of-life decisions including suicide, palliative care and sedation until death.
Call Number: R726 .H379 2023
Compassion-Based Approaches in Loss and Grief by
Compassion-Based Approaches in Loss and Grief introduces clinicians to a wide array of strategies and frameworks for engaging clients throughout the loss experience, particularly when those experiences have a protracted course. In the book, clinicians and researchers from around the world and from a variety of fields explore ways to cultivate compassion and how to implement compassion-based clinical practices specifically designed to address loss, grief, and bereavement. Students, scholars, and mental health and healthcare professionals will come away from this important book with a deepened understanding of compassion-based approaches and strategies for enhancing distress tolerance, maintaining focus, and identifying the clinical interventions best suited to clients' needs.
Call Number: BF575.G7 C6448 2023
The In-Between by
NEW YORK TIMES BESTSELLER * Passionate advocate for end-of-life care and TikTok star Hadley Vlahos shares moving stories of joy, wisdom, and redemption from her patients' final moments in this "brilliant" (Zibby Owens, Good Morning America) memoir. "This extraordinary book helps dispel fear around death and dying--revealing it to be a natural part of our soul's evolution."--Laura Lynne Jackson, New York Times bestselling author of Signs and The Light Between Us Talking about death and dying is considered taboo in polite company, and even in the medical field. Our ideas about dying are confusing at best: Will our memories flash before our eyes? Regrets consume our thoughts? Does a bright light appear at the end of a tunnel? For most people, it will be a slower process, one eased with preparedness, good humor, and a bit of faith. At the forefront of changing attitudes around palliative care is hospice nurse Hadley Vlahos, who shows that end-of-life care can teach us just as much about how to live as it does about how we die. Vlahos was raised in a strict religious household, but began questioning her beliefs in high school after the sudden death of a friend. When she got pregnant at nineteen, she was shunned by her community and enrolled herself in nursing school to be able to support herself and her baby. But nursing soon became more than a job: when she focused on palliative care and hospice work, it became a calling. In The In-Between, Vlahos recounts the most impactful experiences she's had with the people she's worked with--from the woman who never once questioned her faith until she was close to death, to the older man seeing visions of his late daughter, to the young patient who laments that she spent too much of her short life worrying about what others thought of her--while also sharing her own fascinating journey. Written with profound insight, humility, and respect, The In-Between is a heartrending memoir that shows how caring for others can transform a life while also offering wisdom and comfort for those dealing with loss and providing inspiration for how to live now.
Call Number: RT87.T45 V53 2023
Core Curriculum for the Hospice and Palliative RN, 5th Edition by Call Number: R726.8 .C673 2022
Death Doula by
Help the dying and their loved ones by becoming a death doula. Have you witnessed someone's last days and felt completely inept at supporting them as they prepared for the inevitable? Would you like to help dying people, and their loved ones, deal with the numerous internal and external challenges surrounding death? Becoming a trained death doula allows you to provide hands-on support to someone who is dying. Kelly Ruby Hanson relies on her experience as a death doula, life coach, and healthcare professional of twenty years to teach others what the dying process entails and how death doulas are an essential part of the dying person's comfort and care team. End of life is a complex time full of unknown experiences and feelings. In her book, Death Doula, Kelly simplifies the tools and techniques you'll need to master to best serve people whose lives are ending. By reading this book, you will learn to: Ask the right questions to start a conversation about the process of dying; Help clients identify their immediate needs in terms of surroundings, people, funeral arrangements, paperwork, etc.; Create a comprehensive end-of-life plan; Increase comfort and contentment by providing physical, emotional, and spiritual support; Implement self-care practices to prevent burnout. Buy this book today to develop your death doula skills and learn how to care for the dying effectively and lovingly.
Call Number: R726.8 .H357 2021x
Death and Dying
Understanding End of Life Practices: Perspectives on Communication, Religion and Culture by
This book is an exploration of issues that are essential in end of life care. Understanding end of life practices across cultures and religions is important in the delivery of patient centered end of life care. This book helps clinicians and non-clinicians understand the various end of life practices in their vast patient populations, further contributing to providing empathetic and compassionate end of life care to patients. With the advent of many new options at the end of life, this book also explores the modern day approaches to end of life often sought by patients when faced with disease progression and adversity.
Call Number: R726.8 .U53 2023x
Clearing the Path by
Clearing the Path is a collection of clinical stories that illustrate practical, applicable communication tools for professionals in work with end-of-life patients and families. These vignettes from practice demonstrate how impending death, death itself, and the loss of a relationship affect the lives and grief of both patients and survivors. Written 13 years after its companion volume The Weeping Willow, the book brings even more complex encounters and nuanced emotions from additional years of experience in the field. The stories are woven in with the counseling process, thought process, and dilemmas of the counselor. Each story is then followed by "Notes to the Practitioner" with clear, practical and professional advice on navigating various communication issues and end with "Conclusions" which are short summaries of each vignette's teachings. At the end of each chapter the reader will find recent, annotated references for those who wish to read more about the topic. Chapters provide new, in-depth tools for dealing with death, grief, and loss from both the griever and the counselor or medical professional's perspective. What is unique to this book is the insight into the authentic human emotions experienced by both counselors and clients in these encounters with dying and grieving, making it useful for both the caregivers and the recipients of end-of-life care. Acknowledging that communication is individual and dependent on all the involved parties, these stories were selected to demonstrate many ways of communication through a range of situations, as well as the various attitudes, harmful and helpful, revealed in responses from people surrounding the patient or griever. Clearing the Path is not a conventional "how- to" book and it aims instead to teach by example from the hands-on counseling experiences of two experts who have worked in the field of field of death and dying, grieving and loss with responsibility and care. For professionals at all levels of experience those looking to navigate the difficulties of end-of-life care, this is the perfect guide.
Call Number: BF789.D4 H35 2022ISBN: 9780197636879
Finding Dignity at the End of Life by
Finding Dignity at the End of Lifediscusses the need for palliative care as a human right and explores a whole-person methodology for use in treatment. The book examines the concept of palliative care as a holistic human right from the perspective of multiple aspects of faith, ideology, culture, and nationality. Integrating a humanities-based approach, chapters provide detailed discussions of spirituality, suffering, and healing from scholars from around the world. Within each chapter, the authors address a different cultural and religious focus by examining how this topic relates to questions of inherent dignity, both ethically and theologically, and how different spiritual lenses may inform our interpretation of medical outcomes. Mental health practitioners, allied professionals, and theologians will find this a useful and reflective guide to palliative care and its connection to faith, spirituality, and culture.
Call Number: R726.8 .F5527 2021
Communication in Palliative Nursing by
Communication in Palliative Nursing presents the COMFORT Model, a theoretically-grounded and empirically-based model of palliative care communication. Built on over a decade of communication research with patients, families, and interdisciplinary providers, and reworked based on feedback from hundreds of nurses nationwide, the chapters outline a revised COMFORT curriculum: Connect, Options, Making Meaning, Family caregivers, Openings, Relating, and Team communication. Based on a narrative approach to communication, which addresses communication skill development, this volume teaches nurses to consider a universal model of communication that aligns with the holistic nature of palliative care. This work moves beyond the traditional and singular view of the nurse as patient and family educator, to embrace highly complex communication challenges present in palliative care-namely, providing care and comfort through communication at a time when patients, families, and nurses themselves are suffering. In light of the vast changes in the palliative care landscape and the increasingly pivotal role of nurses in advancing those changes, this second edition provides an evidence-based approach to the practice of palliative nursing. Communication in Palliative Nursing integrates communication theory and health literacy constructs throughout, and provides clinical tools and teaching resources to help nurses enhance their own communication and create comfort for themselves, as well as for patients and their families.
Call Number: RT87.T45 C63 2020
Ethical Challenges in Multi-Cultural Patient Care: by
This book provides an up-to-date description of cross-cultural aspects of end-of-life decision-making. The work places this discussion in the context of developments in the United States such as the emphasis on patient informed consent, "right to die" legal cases, and the federal Patient Self-Determination Act. With the globalization of health care and increased immigration from developing to developed countries, health care professionals are experiencing unique challenges in communicating with seriously ill patients and their families about treatment options as well as counselling all patients about advance medical care planning. While many Western countries emphasize individual autonomy and patient-centered decision-making, cultures with a greater collectivist orientation have, historically, often protected patients from negative health information and emphasized family-centered decision-making. In order to place these issues in context, the history of informed consent in medicine is reviewed. Additionally, cross-cultural issues in health care decision-making are analysed from the perspective of multiple philosophical theories including deontology, utilitarianism, virtues, principlism, and communitarian ethics. This book is a valuable addition to courses on end-of-life care, death and dying, cross-cultural health, medical anthropology, and medical ethics and an indispensable guide for healthcare workers dealing with patients coming from various cultural backgrounds.
Call Number: R726 .S437 2019x
Extreme Measures: Finding a better path to the end of Life by
An ICU and Palliative Care specialist offers a framework for a better way to exit life that will change our medical culture at the deepest level In medical school, no one teaches you how to let a patient die. Jessica Zitter became a doctor because she wanted to be a hero. She elected to specialize in critical care-to become an ICU physician-and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and frail it was unimaginable he would ever come back to life. She began to question her choice. Extreme Measures charts Zitter's journey from wanting to be one kind of hero to becoming another-a doctor who prioritizes the patient's values and preferences in an environment where the default choice is the extreme use of technology. In our current medical culture, the old and the ill are put on what sheterms the End-of-Life Conveyor belt. They are intubated, catheterized, and even shelved away in care facilities to suffer their final days alone, confused, and often in pain. In her work Zitter has learned what patients fear more than death itself- the prospect of dying badly. She builds bridges between patients and caregivers, formulates plans to allay patients' pain and anxiety, and enlists the support of loved ones so that life can end well, even beautifully. Filled with rich patient stories that make a compelling medical narrative, Extreme Measures enlarges the national conversation as it thoughtfully and compassionately examines an experience that defines being human.
Call Number: R726.8 .Z58 2017
Modern Death: how medicine changed the end of life
There is no more universal truth in life than death. No matter who you are, it is certain that one day you will die, but the mechanics and understanding of that experience will differ greatly in today's modern age. Dr. Haider Warraich is a young and brilliant new voice in the conversation about death and dying started by Dr. Sherwin Nuland and Atul Gawande. Dr. Warraich takes a broader look at how we die today, from the cellular level up to the very definition of death itself. The most basic aspects of dying--the whys, wheres, whens, and hows--are almost nothing like what they were mere decades ago. Beyond its ecology, epidemiology, and economics, the very ethos of death has changed. Modern Death, Dr. Warraich's debut book, will explore the rituals and language of dying that have developed in the last century, and how modern technology has not only changed the hows, whens, and wheres of death, but the what of death. Delving into the vast body of research on the evolving nature of death, Modern Death will provide readers with an enriched understanding of how death differs from the past, what our ancestors got right, and how trends and events have transformed this most final of human experiences.
Call Number: R726.8 .W37 2017- Perinatal and Pediatric Bereavement in Nursing and Other Health Professions by
This is a definitive, state-of-the-art resource for professionals who provide bereavement care to families when a baby or older child dies. Culling the most important new evidence from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice recommendations to fill a gap in the current literature. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal and pediatric death. Expert contributors from the fields of nursing and other health professions disseminate new theoretical approaches and re-examine current concepts in light of new research.
Call Number: RG631 .B53 2016x
Spirituality and Coping with Loss: end of life healthcare practice
Spirituality and Coping with Loss: End of Life Healthcare Practicedescribes a research study that reflects nurses' experience of the nature of loss encountered in end of life care settings as well as the ways in which spirituality is a resource in coping in these situations. Key findings indicate how nurses' spiritual development impacts their proficiency in spiritual care. These findings will be of interest to nurses and nurse educators as well as other healthcare professionals.
Call Number: RZ401 .G74 2016
When Breath Becomes Air by
#1 NEW YORK TIMES BESTSELLER * For readers of Atul Gawande, Andrew Solomon, and Anne Lamott, a profoundly moving, exquisitely observed memoir by a young neurosurgeon faced with a terminal cancer diagnosis who attempts to answer the question What makes a life worth living? At the age of thirty-six, on the verge of completing a decade's worth of training as a neurosurgeon, Paul Kalanithi was diagnosed with stage IV lung cancer. One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi's transformation from a naïve medical student "possessed," as he wrote, "by the question of what, given that all organisms die, makes a virtuous and meaningful life" into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality. What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir. Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. "I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything," he wrote. "Seven words from Samuel Beckett began to repeat in my head: 'I can't go on. I'll go on.'" When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both. Praise for When Breath Becomes Air "I guarantee that finishing this book and then forgetting about it is simply not an option. . . . Part of this book's tremendous impact comes from the obvious fact that its author was such a brilliant polymath. And part comes from the way he conveys what happened to him--passionately working and striving, deferring gratification, waiting to live, learning to die--so well. None of it is maudlin. Nothing is exaggerated. As he wrote to a friend: 'It's just tragic enough and just imaginable enough.' And just important enough to be unmissable."--Janet Maslin, The New York Times "An emotional investment well worth making: a moving and thoughtful memoir of family, medicine and literature. It is, despite its grim undertone, accidentally inspiring."--The Washington Post "Possesses the gravity and wisdom of an ancient Greek tragedy . . . [Kalanithi] delivers his chronicle in austere, beautiful prose. The book brims with insightful reflections on mortality that are especially poignant coming from a trained physician familiar with what lies ahead."--The Boston Globe "Devastating and spectacular . . . [Kalanithi] is so likeable, so relatable, and so humble, that you become immersed in his world and forget where it's all heading."--USA Today "It's [Kalanithi's] unsentimental approach that makes When Breath Becomes Air so original--and so devastating. . . . Its only fault is that the book, like his life, ends much too early."--Entertainment Weekly "[When Breath Becomes Air] split my head open with its beauty."--Cheryl Strayed
Call Number: RC280.L8 K35 2016
Stay, Breathe with Me: the gift of compassionate medicine
Part reportage, part rallying cry for compassion to embrace the human side of illness and the healing art of care, Stay, Breathe with Me, is an appeal to revive medicine's forgotten mandate to ease suffering. When suffering invades body, mind, and soul, what joy there is to be heard and understood. And when the gentle art of caring, known as medical palliation, provides whole person care to relieve pain and anguish, hope can survive. This ancient practice of palliation views the patient both as a participating partner in the art of care and an injured storyteller whose wisdom can guide healing hands. Informed by the voices of the seriously ill, their families, and the lifelong experience of a palliative care nurse and medical social worker, Stay, Breathe with Me, illuminates the importance of bringing heart and compassion back into health care.
Call Number: RC48 .A46 2016x
The Conversation by
In this "enlightening" (Jane Brody, New York Times) book, Harvard Medical School physician Angelo E. Volandes offers a solution to traumatic end-of-life care: talking, medicine's oldest tool. There is an unspoken dark side of American medicine--keeping patients alive at any price. Two thirds of Americans die in healthcare institutions, tethered to machines and tubes at bankrupting costs, even though research shows that most prefer to die at home in comfort, surrounded by loved ones. Dr. Angelo E. Volandes believes that a life well lived deserves a good ending. Through the stories of seven patients and seven very different end-of-life experiences, he demonstrates that what people with a serious illness, who are approaching the end of their lives, need most is not new technologies but one simple thing: The Conversation. He argues for a radical re-envisioning of the patient-doctor relationship and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care. It might be the most important conversation you ever have.
Call Number: R726.8 .V648 2016
The Last Mile of the Way: multiculturalism and diversity nursing end of life care
It's a fact that hospice and palliative care are consistently underused by people of color. Many reasons account for this discrepancy, including lack of access, socioeconomic factors, and cultural influences. Transcultural nursing addresses these cultural aspects of nursing, offering compassionate, effective, and culturally relevant care to patients. This is especially important in end-of-life care.
In The Last Mile of the Way, author Theresita (Tacy) Silverberg-Urian, RN, BSN, CHPN, presents ten interviews with multicultural nurses who care for the terminally ill. Through these nurses’ stories, the impact that providers of color have in hospice settings becomes obvious, as does the role sensitivity plays in regard to each patient’s ethnic and cultural background.
Silverberg-Urian and her colleagues represent a mixture of first, second, and third generation Americans from multiple different countries and religions. But all share a sense of mission: to provide maximum comfort to patients in their care. All possess a “hospice heart.”
While most works on transcultural nursing focus solely on the patient—the most important person in the equation—The Last Mile of the Way goes one step further, examining the influence ethnicity, religion, values, beliefs, and cultural competency has on both patient and caregiver.
Silverberg-Urian defines her own “good culturally competent death” where talking about death and dying with her family and providers is the norm. She provides helpful internet resources and various transcultural nursing books to reference
Call Number: RT86.54 .S55 2015x
Dying in America by Call Number: R726.8 .D95 2015x
From Sun to Sun by
Twenty-one people of different ages have one thing in common; they're within six months of their deaths. They've endured the battle of the medical system as they sought cures for their illnesses, and are now settling in to die. Some reconcile, some don't. Some are gracious, some not. As Nina Angela McKissock, a highly experienced hospice nurse, goes from home to home and within the residential hospice, she shares her journey of deep joy, humorous events, precious stories, and heartbreaking love.Free of religiosity, dogma, or fear, From Sun to Sun brings readers into McKissock's world--and imparts the profound lessons she learns as she guides her beloved patients on their final journey.
Call Number: RT87.T45 M55 2015x
Palliative Care
Handbook of Palliative Care by Call Number: R726.8 .H36 2024x
Palliative and hospice nursing care guidelines by Call Number: RT87.T45 W754 2024x
Hospice & Palliative Care Handbook, Fourth Edition by
"Hospice & Palliative Care Handbook, Fourth Edition, offers concise, focused coverage of all aspects of hospice and palliative care for clinicians, managers, and other team members who provide important care while meeting difficult multilevel regulations. Filled with key topics such as professional standards and guidelines, bereavement services considerations, outcomes, goals, and quality control. Update to 2022 Centers for Medicare & Medicaid regulations"--
Call Number: RA1000 .M37 2024
Evidence-Based Practice of Palliative Medicine (also ebook) by
Using a practical, question-and-answer approach, Evidence-Based Practice of Palliative Medicine, 2nd Edition, helps you provide optimal care for patients and families who are dealing with serious illness. This unique reference focuses on patient and family/caregiver-centered care, highlighting the benefits of palliative care and best practices for delivery. The highly practical, user-friendly format sets it apart from other texts in the field, with concise, readable chapters organized around clinical questions that you're most likely to encounter in everyday care. Uniquely organized using a question-and-answer approach, making it easy to find answers to common questions asked by practitioners and patients. Up-to-date, reader-friendly chapters explore interventions, assessment techniques, treatment modalities, recommendations and guidelines, communication techniques, and available resources for palliative care. Expanded discussions on hospice in every chapter, and a new emphasis on pediatrics, with increased material on pediatric malignancies, developmental delays, cystic fibrosis, and perinatal palliative care. New chapters on wellness of the palliative care practitioner, patients with opioid use disorders, telehealth in palliative care, health disparities, rural palliative care, caring for people with hematologic malignancies, integrative and alternative therapies, LGBTQ+ populations, mobile health technologies, and national palliative care implementation strategies. High-quality evidence gathered and reviewed by leading experts in palliative medicine, including clinicians, educators, and researchers across a broad range of disciplines. Numerous algorithms throughout help you make informed decisions, and "take-home" points in every chapter provide a quick summary of key content. Enhanced eBook version included with purchase. Your enhanced eBook allows you to access all of the text and figures from the book on a variety of devices.
Call Number: R726.8 .E928 2023
Death, Dying and Palliative Care in Children and Young People by
Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the 'good death' or 'dying well', grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences. The book will be beneficial to the students of, and individuals interested in, psychology and nursing along with other health and social care courses. It will further be of interest to individuals interested in gaining more understanding of the experiential aspects of death, dying and palliative care in children and young people from health psychology perspectives.
Call Number: RJ249 .R63 2023
Advanced Practice Palliative Nursing 2nd Edition by
Like the first edition, this is a seminal textbook for the advanced practice nursing care of the seriously ill and dying. This comprehensive work addresses all aspects of palliative care including physical, psychological, social, and spiritual needs. It brings to the forefront current issues of health equity, managing through crisis, and meeting the needs of diverse populations. Each chapter contains case examples and a strong evidence base to support the highest quality of care. The text is written by leaders in the field and includes authors who have pioneered the role of the advanced practice nurse in palliative care. This volume offers advanced practice content and practical resources for clinical practice across all settings of care and encompassing all ages, from pediatrics to geriatrics.This newly revised edition has been reorganized to meet the needs of the APRN according to role delineation and practice issues. It offers foundation information on leadership, practice, and the various roles of the APRN as an administrator, educator, policy advocate, and researcher. The various settings of APRN work includes acute care settings (clinical care unit, intensive care unit, and emergency department), clinic (specialty care, primary care, and palliative care), community, rehabilitation, residential facilities, and telehealth. This edition also gives particular attention to special populations, including chapters on health disparities, economic disadvantages for urban dwellers, members of the LGBTQ+ community, Veterans, and Survivorship. There are sections wholly devoted to pediatric care, end of life communication, and the ethics APRNs have to navigate on a daily basis. Written by current APRNs for fellow APRNs, this text provides practical resources for clinical practice across a variety of topics.
Call Number: R726.8 .A38 2023
Palliative Care Nursing: caring for suffering patients
Palliative Care Nursing: Caring for Suffering Patients continues to explore the concept of suffering as it relates to nursing practice in an updated new edition. This text helps practicing nurses and students define and recognize various aspects of suffering across the lifespan and within various patient populations, while providing guidance in alleviating suffering. In addition, the authors discuss ways nurses that witness suffering can optimize their own coping skills and facilitate personal growth. The Second Edition aligns with the recently updated ELNEC and AACN competencies and features three new chapters discussing advance care planning, palliative care for those with serious illnesses, and strategies for having difficult conversations with patients and families.How do we identify a patient who is suffering? How do we assess whether our patient (and/or their family) is coping with the event? What can we do to alleviate patient suffering? How can we convey the extent of the suffering to the other members of the healthcare team and advocate excellent palliative care for our patients? Palliative Care Nursing: Caring for Suffering Patients, Second Edition answers these questions and more, making it an indispensable resource for nursing students and nurses employed in a variety of health care settings.
Call Number: RT87 .T45 P23 2023
Palliative Care Perspectives by
Palliative Care Perspectives is a guide to the art and science of palliative care that links real stories of illness with practical advice to delineate clinical practice in a way that reflects the daily concerns of clinicians. Clearly and compassionately written, this book emphasizes importanttopics often neglected in formal clinical training, including the history and evolution of palliative care in the United States, as well as how clinicians can better understand aging and dying from both a physiological and human perspective. Written by a recognized pioneer in the field of palliativecare, each chapter highlights this human approach to illness with narratives and anecdotes drawn from decades of practice experience. This new edition features thoroughly updated research and citations, a new chapter on burnout and compassion fatigue, and a significant expansion of the topic ofintercultural communication. Well-grounded in the academic literature, Palliative Care Perspectives is an ideal introduction to the emerging field of palliative care for care providers new to practice, as well as lay readers seeking to learn more about chronic and terminal illness, presented in apersonal and accessible format.
Call Number: RT87.T45 2022
Interdisciplinary Pediatric Palliative Care by
Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. The field of palliative care is based on the fundamental principle that an interdisciplinary team is optimal in caring for patients and their families throughout the illness trajectory. The text integrates themes including goals of care, discipline-specific roles, cultural and spiritual considerations, evidence-based outcomes, and far more. It emphasizes the value of words and high-quality communication in palliative care. Importantly, content acknowledges challenging periods between team members, and how those can ultimately benefit team, patient, and family care outcomes. Each chapter includes the perspective of the family of a seriously ill child in the form of a vignette to promote care team understanding of this crucial perspective. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. Interdisciplinary Pediatric Palliative Care is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocial clinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work.Advance Praise for Interdisciplinary Pediatric Palliative Care, Second Edition"This new edition is as much a testament to pediatric palliative care's remarkable evolution as a field as it is a quintessential playbook for providing the high-quality holistic and compassionate care that families with seriously ill children desperately want. Every page thoughtfully weaves together how interprofessional teams can contribute collaboratively to learning about and supporting the preferences, needs and priorities of the precious patients and families in their circle of care. It is a must read for all practitioners to enhance their palliative care understanding, appreciation and ability as a foundation for optimizing quality of life in practice." - Rebecca Kirch, JD, Executive Vice President of Policy and Programs, National Patient Advocate Foundation"This book offers a truly contemporary and comprehensive view of the entire field of pediatric palliative care. The focus on social determinants of health, cultural humility, and disparities in care could not be timelier, and the section highlighting conflict and conflict resolution should be required reading. The continued and purposeful inclusion of interdisciplinary clinicians in producing each chapter models the palliative care team itself-an approach in which all voices are necessary as we seek to provide the most compassionate care possible." - Rachel Thienprayoon, MD, MSCS, FAAP, FAAHPM, Associate Professor of Anesthesia, Medical Director, StarShine Hospice and Palliative Care, Cincinnati Children's Hospital Medical Center
Call Number: RJ249 .T49 2022
Palliative Medicine: a Case-Based Manual by
Palliative medicine is the medical care provided for people who have a life limiting illness or condition. It encompasses both the physical symptoms a person may experience but also the psychosocial, emotional, and ethical issues that may arise.Now in its fourth edition, Palliative Medicine: A case-based manual walks clinicians through the management of the most common situations found in palliative medicine, from diagnosis and managing symptoms through to grief and bereavement. Using real patient case scenarios and an easy-to-readquestion and answer format, it gives students and medical professionals an accessible, evidence-based entryway to gain the skills and knowledge needed to provide high quality palliative and end of life care to patients and their families.This new edition has been fully updated to cover the latest guidance, including new chapters dedicated to medical cannabis, opioids, grief and bereavement, and wider issues including palliative care in the community, structurally vulnerable populations, and public health.Written by over 50 experienced palliative care clinicians and educators, this book will be a welcome guide for palliative care workers, medical and nursing students, and medical professionals of any specialty where palliative needs might arise.
Call Number: R726.8 .M23 2022
Using Guided Imagery and Hypnosis in Brief Therapy and Palliative Care by
Using Guided Imagery and Hypnosis in Brief Therapy and Palliative Care presents a model for effective single-session therapy. Chapters include more than a dozen case studies with transcripts and commentary. Readers will learn how to use an adapted model of Remen's healing circle for preparing patients for surgery, and guided imagery and other approaches are presented for enhancing palliative care. Extensive appendixes provide a wide variety of valuable tools that psychotherapists can use with clients concerned with end-of-life issues.
Call Number: RC489.F35 B38 2021x
Pediatric Palliative Care by
Pediatric Palliative Care: A Model for Exemplary Practice lays out a road map for health-care providers interested in optimizing care for seriously ill children and their families. Grounded in clinical practice and the study of positive rather than problematic encounters between providers and parents, the book presents an evidence-based model of exemplary interaction. The chapters offer a clear understanding of the complex, holistic process of interaction between providers and parents, as well as the personal and professional knowledge and skills needed to interact in optimal ways. This is a one-of-a-kind guidebook for health-care providers interested in (re)discovering how to maximize positive outcomes for both families and providers. It is also a valuable source of inspiration for educators, supervisors, and hospital administrators who want to facilitate personal and professional development and create supportive environments for students, providers, seriously ill children, and their families.
Call Number: RJ249 .D38 2021ISBN: 9780367365684
Communication and Care Coordination for the Palliative Care Team by
Note to Readers: Publisher does not guarantee quality or access to any included digital components if book is purchased through a third-party seller. A focus on intentional communication, team building, and relational maintenance This text is designed to help form and maintain palliative care teams that survive and thrive. Whether you are starting a new team or hoping to help an existing team, this text addresses aspects of team players, leadership, meetings, organizational culture, and self- and team-care through a combination of empirical data and real voices from healthcare professionals in palliative care practice. By focusing on the individual professional in relation to team health and success, this text shows how to develop high-quality, high-performing palliative care teams. Perfect for students and working professionals, this text is useful at any time in your career or your team's development. It explores the types of providers involved in palliative care, their roles, possible conflicts, and the opportunity to amplify their work as a team while overcoming the stigma that may be attached to palliative care. This book focuses on the foundational role of communication in leadership, team building, and the delivery of patient care. Designed to provide workable solutions to challenges such as poor team design, siloing, and faulty communication, it provides suggestions that can be implemented immediately by your palliative care team. This focus allows healthcare professionals who are passionate about palliative care to grow into high-functioning teams with a focus on excellent patient care.Key Features: Satisfactory and unsatisfactory palliative care experiencesStories from nurses, social workers, chaplains, physicians, pharmacists, executives, patients, and familiesPearls From the Field: Provider and team takeawaysBest practices of team leadersTips for individuals and palliative care teams to communicate with other providers, departments, and senior leadershipDiscussions on how to improve short-term and long-term functionalityOutlines to use as predictors of burnout for palliative care professionals and teamsSelf-care and team-care suggestionsA combination of recent research and theory in an accessible writing styleIncludes podcasts, videos, and case study and self-care plan supplements
Call Number: R726.8 .I44 2021x
Palliative Skills for Frontline Clinicians by
Rooted in everyday hospital medicine, Palliative Skills for Frontline Clinicians addresses the challenges of delivering complex care to patients living with serious illnesses. Spanning emergency medicine, internal medicine, surgery and various subspecialties, each chapter reads like a story, comparing usual care with a step-by-step palliative-based approach. This case-based book features a multidisciplinary, palliative-trained authorship, including neurologists, nephrologists, emergency physicians, surgeons, intensivists, and obstetricians. Divided into four parts, Palliative Skills for Frontline Clinicians outlines common clinical scenarios across settings and specialties to highlight unmet needs of patients with potentially terminal illnesses. Each case is broken down into the usual standard approach, and delves into detail regarding different palliative interventions that can be appropriate in those scenarios. These are meant to be practice changing; down to the actual words used to communicate with patients. In addition to the book's focus on the principles of palliative care and the "art" of treating the patient, approaches to communication with the patient's families for the best long-term outcomes are discussed. Concise and pragmatic, Palliative Skills for Frontline Clinicians is meant to be practice changing. It provides readers with both a new conceptual framework, as well as actual words to communicate with patients and medication doses for symptom management. It is an invaluable resource for non-palliative trained clinicians who wish to strengthen their palliative care skills.
Call Number: R726.8 .P3556 2020x
Adult Palliative Care for Nursing, Health and Social Care by
In this far-ranging textbook on palliative and end of life care, John Costello and a team of palliative care specialists take a patient-centred approach. Discussing palliative and end of life care across a range of diseases and illnesses, each chapter includes real-life case studies that focus on both the patient experience and the experiences of the family members of service users. Original in its approach to palliative and end of life care, Adult Palliative Care focuses on a range of non-cancer conditions. Thoughtfully balancing theory with practice, and interprofessional in its scope, Adult Palliative Care would benefit any health professional dealing with or working in the field of palliative and end of life care.
Call Number: R726.8 .A38 2019x
Oxford Textbook of Palliative Nursing by
The Oxford Textbook of Palliative Nursing remains the most comprehensive treatise on the art and science of palliative care nursing available. Dr. Betty Rolling Ferrell and Dr. Judith A. Paice have invited 162 nursing experts to contribute 76 chapters addressing the physical, psychological, social, and spiritual needs pertinent to the successful palliative care team. Organized within 7 Sections, this new edition covers the gamut of principles of care: from the time of initial diagnosis of a serious illness to the end of a patient's life and beyond. This fifth edition features several new chapters, including chapters on advance care planning, organ donation, self-care, global palliative care, and the ethos of palliative nursing. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatric. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education.
Call Number: RT87.T45 T49 2019
Primer of palliative careCall Number: R726.8 .P738 2019x
Palliative Care: A guide for the social workers by
Accessible and instructive, Palliative Care guides and inspires health social workers to integrate palliative care principles into their current clinical practice. Through the lenses of environmental theory and intersectionality, rich case narratives and diverse practice settings highlightopportunities for social workers to enhance their work, thereby advancing whole-person care in the face of serious illness. The volume also models engagement, assessment, and intervention through key palliative care skills and language. Chapters include questions to concretize ideas and demonstratereal-world application, while case narratives cover a range of settings, diagnoses, and populations. This book is a useful tool for any social worker working with individuals and families navigating complex health care systems.
Call Number: HV3001.A4 P35 2019
Palliative Care Nursing by
"This 5th edition is an important achievement; it is a symbol of commitment to the field of palliative nursing, where we have been and where we are going." - Betty Rolling Ferrell, PhD, MA, FAAN, FPCN, CHPN From the Foreword The aging population has only grown since the first edition of this comprehensive and seminal publication nearly 20 years ago. Based on the need to humanize rather than medicalize the illness experience for patients, this text delves into palliative care beyond the specific diseases affecting the patient. Instead, content focuses on the whole person and family. Palliative patients struggle with chronic, debilitating, and painful conditions, and grapple with the fact that life as they knew it has already passed away. Families and friends reciprocally suffer, not knowing how to help and therefore become the secondary victims of the disease. This is not the challenge of a lone nurse, or a single physician, therapist, or social worker. Rather, palliative and hospice care requires the expertise and unique roles of an interprofessional team to help the patient and family strengthen their resilience, continue to find meaning and purpose in life, and cure what can be cured. Palliative Care Nursing, Fifth Edition, delivers advanced empirical, aesthetic, ethical and personal knowledge. This new edition brings an increased focus on outcomes, benchmarking progress, and goals of care. It expounds upon the importance of the cross-disciplinary collaboration introduced in the previous edition. Every chapter in Sections I, II, and III includes content written by a non-nursing member of the interprofessional team. Based on best-evidence and clinical practice guidelines, this text presents comprehensive, targeted interventions responsive to the needs of palliative and hospice patients and family. Each chapter contains compassionate, timely, appropriate, and cost-effective care for diverse populations across the illness trajectory. Key FeaturesThe expanded new edition offers current, comprehensive, one-stop source of highly-relevant clinical information on palliative careLife-span approach: age-appropriate nursing considerations (e.g. geriatric, pediatric and family)Includes disease-specific and symptom-specific nursing management chaptersPromotes a holistic and interdisciplinary approach to palliative careOffers important legal, ethical and cultural considerations related to death and dyingCase Studies with Case Study Conclusion in each clinical chapter New to The Fifth Edition: An expanded chapter on Palliative Care incorporates most up to date scope and standards, information on Basic and Advanced HPNA certification, self-reflection and self-care for nurses.A chapter on Interprofessional CollaborationInstructor Resources: Power points and Test bank
Call Number: RT87.T45 P343 2019
Perspectives on Behavioural Interventions in Palliative and End-of-Life Care by
The challenges faced by individuals and families at the end of life are still incredibly diverse, and many behavioural interventions and clinical approaches have been developed to address this great diversity of experiences in the face of dying and death, helping providers to care for their clients. Perspectives on Behavioural Interventions in Palliative and End-of-Life Care is an accessible resource that collates and explores interventions that can be used to address a wide range of behavioural, psychological, social and spiritual issues that arise when people are facing advanced chronic or life-limiting illness. With perspectives from experienced clinicians, providers, and caregivers from around the world, this book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field. Its chapters explore: Interventions to enhance communication and decision making The management of physical and mental health symptoms Meaning-Centred Psychotherapy for cancer patients Dignity Therapy Interventions embracing cultural diversity and intersectionality. Together with Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Context, the book provides a foundation for collaborative international and interprofessional work by providing state-of science information on behavioural interventions addressing mental health and wellness. It is of interest to academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work, and is essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.
Call Number: R726.8 .P4716 2018
Chaplaincy in Hospice and Palliative Care by
Hospice chaplains have traditionally played a unique part in palliative care, providing human compassion and support to help ease life's final chapter. This book thoughtfully tackles the question at the heart of modern hospice chaplaincy: do chaplains have a distinctive role in an increasingly secular society? A comprehensive look at why and how this work needs to be done, each chapter will be a rich resource for hospice chaplains and anyone working within a hospice multi-disciplinary team. Taking the form of reflections by chaplains and other professionals, they examine the tension between sacred and secular space, explore how spiritual care works in a changing society, and look at what voice a chaplain has within the hospice team. Essential reading for chaplains, this insightful book reflects on the important work undertaken by hospice chaplaincies and explains why they continue to be a vital resource for end-of-life care.
Call Number: BL504 .C428 2017
Awake at the Bedside: Contemplative Teachings on palliative and end-of-life Care by
This book isn't about dying. It's about life and what life has to teach us. It's about caring and what giving care really means. In Awake at the Bedside, pioneers of palliative and end-of-life care as well as doctors, chaplains, caregivers and even poets offer wisdom that will challenge, uplift, comfort--and change the way we think about death. Equal parts instruction manual and spiritual testimony, it includes specific instructions and personal accounts to inspire, counsel, and teach. An indispensable resource for anyone involved in hospice work or caregiving of any kind. Contributors include Anyen Rinpoche, Coleman Barks, Craig D. Blinderman, Bhikkhu Bodhi, Joshua Bright, Ira Byock, Robert Chodo Campbell, Rafael Campo, Ajahn Chah, Ram Dass, Kirsten DeLeo, Issan Dorsey, Mark Doty, Norman Fischer, Nick Flynn, Gil Fronsdal, Joseph Goldstein, Shodo Harada Roshi, Tony Hoagland, Marie Howe, Fernando Kawai, Michael Kearney, Elisabeth Kubler-Ross, Stanley Kunitz, Stephen and Ondrea Levine, Judy Lief, Betsy MacGregor, Diane E. Meier, W. S. Merwin, Naomi Shihab Nye, Frank Ostaseski, Rachel Naomi Remen, Larry Rosenberg, Rumi, Cicely Saunders, Senryu, Jason Shinder, Derek Walcott, Radhule B. Weininger.
Call Number: BQ4570.C27 A93 2016
Palliative Care in Nursing and Healthcare by
This book helps nursing and healthcare students to prepare for the challenges of working with the increasing number of patients requiring palliative care, so that they can work in partnership with patients and their carers, providing care that is compassionate, practical and backed up by the latest evidence. Delivering palliative care can be emotionally challenging and the book focuses on supporting healthcare staff, allowing them to provide the care that is needed. Key features include: * case studies in every chapter, helping students to practically work through difficult scenarios * reflective activities that assist readers in thinking critically about their care and how to improve it * a holistic approach to palliative care that includes family, carers and interprofessional work * up to date theory and policy. Palliative Care in Nursing and Healthcare is suitable for undergraduate nursing students and allied health students and practitioners. Michelle Brown is Senior Lecturer at the University of Derby.
Call Number: RT87.T45 P31 2016x
Palliative Care Nursing at a Glance by
Palliative Care Nursing at a Glance is the perfect companion for nursing students, health and social care practitioners, and all those involved in palliative care delivery, both in the clinical and home setting. Written by an expert team of academics, nurses, educators and researchers it provides a concise and easy-to-read overview of all the concepts and clinical decision-making skills necessary for the provision of good-quality palliative and end-of-life care. Divided into six sections, the book includes coverage of all key clinical applications, principles of symptom management, palliative care approaches for a range of conditions and patient groups, exploration of the roles of the multi-professional team, as well as ethical challenges. Superbly illustrated, with full colour illustrations throughout Provides information on delivery of care in a range of settings Broad coverage makes it ideal reading for anyone involved in palliative care delivery User-friendly and accessible resource for those working in both specialist and non-specialist adult settings
Call Number: R726.8 .P353 2015x
Compassionate Person-Centered Care for the Dying by
A milestone resource for palliative care nurses that facilitates evidence-based compassionate and humanistic care of the dying A valuable contribution to the evolving field of palliative nursing care. It is authored by a model for this field, Bonnie Freeman, and brings to the bedside what her practice embodies--evidence-based clinically expert care...The CARES tool is a long-needed resource and we are all grateful to the author for moving her passion to paper. It will touch the lives and deaths of patients, families, and the nurses who care for them. --Betty Ferrell, PhD, RN, MA, FAAN, FCPN, CHPN Professor and Director, Division of Nursing Research and Education City of Hope National Medical Center From the Foreword This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author's research-based CARES tool; a reference that synthesizes five key elements demonstrated to enable a peaceful death, as free from suffering as possible: comfort, airway management, management of restlessness and delirium, emotional and spiritual support, and selfcare for nurses. The book describes, step by step, how nurses can easily implement the basic tenets of the CARES tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible. The book identifies the most common symptom management needs in dying patients and describes, in detail, the five components of the CARES paradigm and how to implement them to enable a peaceful death and minimize suffering. It includes palliative care prompts founded on 29 evidence-based recommendations and the National Consensus Project for Palliative Care Clinical Practice Guidelines. The resource also addresses the importance of the nurse to act as a patient advocate, how to achieve compassionate communication with the patient and family, and barriers and challenges to compassionate care. Case studies emphasize the importance of compassionate nursing care of the dying and how it can be effectively achieved. Key Features: Provides nurses with a clear understanding of the most common needs of the dying and supplies practical applications to facilitate and improve care Clarifies the current and often complex literature on care of the dying Includes case studies illustrating the most common needs of dying patients and how these are addressed effectively by the CARES tool Based on extensive evidence as well as on the National Consensus Project for Palliative Care Clinical Practice Guidelines Bonnie Freeman, DNP, ANP, RN, ACHPN, is an adult nurse practitioner in the Department of Supportive Care Medicine at the City of Hope National Medical Center in Duarte, California. She is involved with treating the symptom management needs of many chronically and terminally ill individuals diagnosed with various forms of cancer. Dr. Freeman trained at such excellent facilities as the in-patient units at San Diego Hospice and the Institute of Palliative Medicine in San Diego, California, and the home care hospice program in Owensboro, Kentucky. While in Kentucky, she completed her advanced practice clinical training for adult nurse practitioners with a specialty focus on palliative care through Vanderbilt University in Nashville, Tennessee. This program exposed Dr. Freeman to current concepts in caring for the dying, and enhanced her already significant clinical experience caring for dying individuals acquired from over 30 years working in critical care. Dr. Freeman obtained her MSN from Indiana Wesleyan University, and her DNP f
Call Number: R726.8 .F725 2015
